Send secure communication, including follow-up, to the NBS Follow-Up Team
Resources
Guide to Collecting Dried Blood Spot Newborn Screens
How are Normal, Abnormal and Critical Screening Results Reported to You and Followed-Up?
Cystic Fibrosis (CF) Screening in Virginia
The American College of Medical Genetics and Genomics (ACMG) ACT sheets
Critical Congenital Heart Disease (CCHD)
Early Hearing Detection and Intervention (EHDI) Program
Forms
Record Request by Health Care Provider for Continuity of Care: | Send a fax with your practice letterhead requesting the results to the state lab at 804-225-2595. Include DOB, mom’s last name, and birth hospital if known. |
Notification of Parental Refusal of Dried-Blood-Spot and Critical Congenital Heart Disease Screening | To be completed and signed by the infant’s parent or guardian who refuses the newborn blood spot screening on the grounds that such test conflicts with his/her religious practices or tenets. |
Newborn Screening Dried Blood Spot Collection Kit Order Forms
DGS Form 19049 Order Form for Hospitals and Physicians DGS Form 19050 Order Form for Midwives |
Kits may only be ordered by hospitals, midwives, and physicians’ offices, not by private citizens. These kits must be paid for in advance. Submit the completed order form with payment to the Cashier’s Office, Department of General Services for processing. The Cashier’s Office forwards the orders to DCLS once payments have been confirmed. |
Training
Virginia Newborn Screening Education-CEUs
How to collect a newborn blood spot: NYSDOH | Iowa State Hygienic Laboratory
Informational webinar on Pompe disease and Mucopolysaccharidosis Type I (MPS I)
Websites
Toolkit for Patients with Genetic Conditions
Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children
Centers for Disease Control (CDC) Newborn Screening | Sickle Cell Disease
March of Dimes- Newborn Screening
New York Mid Atlantic Consortium (NYMAC)
Save the Babies Through Screening
National Newborn Screening and Global Resource Center
American College of Medical Genetics (ACMG)
The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs)
Clinical Laboratory Standards Institute (CLSI) Guidelines for Newborn Screening
St. Jude’s Research Hospital, information on sickle cell and other hemoglobinopathies