Data to Care Initiative

What is Data to Care?

•  A joint initiative with HIV Surveillance, Prevention, Care Services and STD Prevention and Surveillance

• Goals
  • To improve health outcomes for persons living with HIV by helping clients to:
    • Be in care (engaged)
    • Stay in continuous HIV care (retention)
    • Have a viral load less than 200 copies/mL (viral suppression)
    • Prevent new HIV infection

• Data to Care has expanded statewide to over 40 local health departments, medical sites, and community-based organizations

How Does Data to Care Work?

• Virginia HIV surveillance data is used to create out-of-care lists
• Out-of-care lists are distributed
• Agencies follow up with out-of-care clients to find out if clients are truly out-of-care
• Agencies enter results into REDCap
• The results are entered back into the HIV surveillance system to update the data

 The Data to Care Process

    

To be on an Out-of-Care list, clients must be:

• HIV-positive and reported to Virginia’s HIV Surveillance data system
• 18 years of age or older
• Living with a last known address in Virginia
• Meet the out-of-care definition

 Current Out-of-Care Definition

• Clients who have not had a care marker within one year or more from the date the out-of-care list was created, but had a care marker in the preceding calendar year

Overall Results

• As of August 2018, results for 602 Data to Care clients have been submitted
• Thirty-five percent of these were found to be “In Care”
• Of the 8% of clients found “Not in Care”, 68% reengaged into HIV care through Data to Care efforts

Data reported to the Virginia Department of Health as of September 2018

 What are the Results Being Used For?                  

• To identify out-of-care clients who need to be linked or reengaged back into HIV care
• Identify data reporting issues
• To update Virginia’s HIV Surveillance data
• Help improve future out-of-care lists

Resources:

• • Data to Care Protocol
  • Data to Care Data Collection Form
  • Coordination of Care and Services Agreement
  • Data to Care FAQs
  • CDC Data to Care Initiative Webpage

Additional Information:

For any additional information or if your agency is interested in participating in Data to Care, please Contact Us.