This data shows yearly information about people with hemophilia and other bleeding disorders who get care at HTC centers in Virginia. It includes details about their age, where they live, and their medical conditions.
About the Data
The data covers from July 1 to June 30 each year. Note that the way we collect data changed in 2023.
Race / Ethnicity
- Information is self-reported by individual or family.
Clinic
- VCUHS- Central Virginia Center for Coagulation Disorders | VCU Health System
- UVA- Hemophilia Treatment Center at UVA | UVA Health
- CNMC- Comprehensive Hemostasis and Thrombosis Program at Children’s National Medical Center
- CHKD- Hemostasis and Thrombosis Center at Children’s Hospital of the King’s Daughters
Diagnosis
- FVIII- factor VIII (8) deficiency, also called Hemophilia A
- FIX- factor IX (9) deficiency, also called Hemophilia B
- VWD- von Willebrand disease
Severity
- Severe- clotting factor levels less than 1%
- Moderate- clotting factor levels of 1-5%
- Mild-clotting factor levels of 6%-30%
Last Updated: October 31, 2024